Publication date: Mar 12, 2019
But rare diseases and the expensive therapies needed to treat them – particularly in an age of scarce economic resources – almost always entail -tragic choices,” warned Avraham Steinberg, MD, an Israeli pediatric neurologist and Talmudic scholar at Jerusalem’s Shaare Zedek Medical Center. Steinberg argued that modern medicine has brought about an enormous increase in life expectancy, and that people with serious chronic diseases, as well as disabled newborns, now can make it into adulthood with the help of very expensive therapies and medicines. Other problems arise, for instance, when a patient is diagnosed with a serious illness but refuses treatment, or another one has a terminal disease and wants to -die with dignity,” but his family opposes the decision. That, Steinberg said, means how to distribute healthcare when drugs for rare genetic illnesses, such as spinal muscular atrophy or Batten disease, can cost $700,000 a year. It’s the fundamental right of every citizen to receive every medical treatment that he deserves, according to his individual condition,” Steinberg said. If two treatments are equally effective, but one is cheap and the other expensive, -everyone understands that you should go for the cheap,” said Steinberg, though he emphasized that the lives of rare disease patients are just as important as people with diabetes or hypertension. The post Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist appeared first on Huntington’s Disease News. The post Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist appeared first on BioNewsFeeds.
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