Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature.

Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature.

Publication date: Apr 05, 2019

To consider the impact of juvenile Huntington disease (JHD) from a biomedical, symptom burden, and total pain palliative care perspective.

This case report was informed by a narrative review of the literature with inclusion of expert opinion from pediatric palliative care, an adult and pediatric neurologist, and a child psychiatrist. Audio-recorded qualitative interview and coauthorship with the pediatric patient’s primary caregiver (his mother).

The JHD impacts all domains of child and family function.

Application of the concept of total pain to JHD informs and guides care for this complex, challenging condition.

Kendrick, L.M., Hudgell, D., Hellman, A., and Weaver. Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature. 06437. 2019 J Palliat Care.

Concepts Keywords
Biomedical Palliative care
Caregiver Pediatrics
Huntington Hospice
Informs
Neurologist
Pain
Palliative Care
Pediatric
Psychiatrist
Symptom

Semantics

Type Source Name
gene UNIPROT IMPACT
disease MESH Juvenile Huntington Disease

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