Publication date: Apr 11, 2019
– Robert Altman, Esquire, March 2004 When something is new for you, such as a positive result on your Huntington’s disease (HD) genetic test, the opportunity to learn from others who have traveled a similar road can be helpful when it comes to strengthening your ability to cope and to feel less anxious. This column will describe three pieces of advice I received about how to live with HD that proved to be helpful. Be a mouse on a wheel Researchers have spent a great deal of time over the years looking for factors that may delay the age-of-onset for Huntington’s disease symptoms. For that reason, regular exercise is something that is encouraged in the HD community, and it’s also one of the most significant pieces of Huntington’s disease-related advice I’ve ever received. Live life for today Although a great deal of hope and optimism surround the Huntington’s disease research and clinical trials that are currently active, there’s no escaping the fact that there is no cure for the underlying cause of HD. The second priceless piece of Huntington’s-related advice is to live life to the fullest. This is advice everyone should take, whether they have the HD gene mutation in their body or not, and I’m often reminded of this one by my wife, Michelle. Knowledge is power The final piece of Huntington’s disease advice that has been extremely important to my HD journey is that having knowledge about the condition provides you with power over it. The three most important pieces of Huntington’s disease-related advice I’ve received: Be a mouse on a wheel. The post Let Me Share Some Words of Wisdom on Huntington’s appeared first on Huntington’s Disease News.
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