Improving patient-centred care for persons with Parkinson’s: Qualitative interviews with care partners about their engagement in discussions of “off” periods.

Improving patient-centred care for persons with Parkinson’s: Qualitative interviews with care partners about their engagement in discussions of “off” periods.

Publication date: Apr 12, 2019

This study explored how care partners (CPs) of persons with Parkinson’s (PwP) are engaged in discussions of “off” symptoms.

During qualitative interviews, CPs of PwP sampled by convenience through the Michael J Fox Foundation online clinical trial matching service were asked to describe their familiarity with “off” symptoms, how “off” symptoms were discussed with clinicians, and the impact of “off” symptoms on them. Data were analysed using constant comparative technique by all members of the research team.

A total of 20 CPs were interviewed. Compared with PwP, they were more likely to describe “off” symptoms to clinicians. CPs identified important aspects of patient-centred care for PD: establishing a therapeutic relationship, soliciting and actively listening to information about symptoms, and providing self-management support to both PwP and CPs. CPs said that clinicians did not always engage CPs, ask about “off” symptoms or provide self-management guidance, limiting their ability to function as caregivers.

By not engaging and educating CPs, “off” symptoms may not be identified or addressed, leading to suboptimal medical management and quality of life for PwP. These findings must be confirmed on a broader scale through ongoing research but suggest the potential need for interventions targeted at clinicians and at CPs to promote patient-centred care for PwP.

Rastgardani, T., Armstrong, M.J., Marras, C., and Gagliardi, A.R. Improving patient-centred care for persons with Parkinson’s: Qualitative interviews with care partners about their engagement in discussions of “off” periods. 20447. 2019 Health Expect.

Concepts Keywords
Clinical Trial Articles
Parkinson Human behavior
Patient Centred Care Humans
Sampled Rape
Therapeutic Relationship Unpaid work
Caregiver
Self management

Semantics

Type Source Name
gene UNIPROT DBF4
gene UNIPROT IMPACT

Similar

Original Article

Leave a Comment

Your email address will not be published. Required fields are marked *