Publication date: Jun 06, 2019
Having grown up with the dark cloud of Huntington’s disease (HD) over the family, I was fully aware of that. To me, Huntington’s disease was a death sentence, pure and simple. A few weeks into this period of time, I attended an education event held by the Huntington Society of Canada at which they provided updates on the latest clinical studies that were being developed. This was the first study to directly focus on the underlying cause of Huntington’s disease: the mutant huntingtin protein. I realized the geneticist was being completely genuine when he said there may be a Huntington’s disease treatment available in time for me. I experienced a real call to action and began to get more involved in fundraising and my local Huntington’s disease community. An effective treatment for delaying the onset of Huntington’s disease symptoms is close. If you’re like I was and think of Huntington’s disease as an automatic death sentence, you will soon learn it is not. Note: Huntington’s Disease News is strictly a news and information website about the disease. The opinions expressed in this column are not those of Huntington’s Disease News, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Huntington’s disease.
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