Who Owns Your Data? Agency, Autonomy, and Inclusivity in the Digital Age

Who Owns Your Data? Agency, Autonomy, and Inclusivity in the Digital Age

Publication date: Sep 06, 2019

Precision medicine requires intimate knowledge of the patient in order to develop personalized treatments. But not all patients are willing to give their data to precision medicine companies. Sage Bionetworks CCO John Wilbanks explores data ownership and informed consent, as well as new ways of innovating with internet-based collaboration.

Concepts Keywords
Action Management Healthcare data
Air Wearable technology
Air Quality Cloud systems
Amazon Internet-based collaboration
Antibiotic Resistance Social media
Archeology Clinical protocol
Assistant Director Digital health technologies
Atlas Search engines
Atmore Container technology
Audit Internet age
Babel Wearable devices
Bespoke Steel
Blood Albums
Bootstrapping Interviews
Boston Draft:Melissa Chase
Cadence Neuroscience
Cambridge Analytica Bioinformatics
Climate Change Clinical protocol
Clinical Protocol Digital health technologies
Clinical Trial Machine learning
Cloud Smartphones
Cognition DNA sequencing
Cohort Study Container technology
Color Blind
Colorectal Cancer
Control Data
Creative Commons
Cross
DDE
Demographic
Digital
Dimension
Disability
Discrimination
Entrepreneur
Equity
Executive Producer
Facebook
Feudal System
Fortney Pete Stark
Free Agency
Gender
Genetic
Graph
Hamstring
Harvard
Harvard Business School
Healthcare
Hermetically Sealed
Informed Consent
Intellectual Property
Interact
Labor Unions
Logging
Mail
Medicine
Meira
Neuroscience
Nonprofit
Open Science
Opiate
Overdose
Paleontology
Paper Model
Patent
PDS
Philosophy
Physical Exam
Podcast
Precision Medicine
Princeton
Privacy
Private Cloud
Protocol
Public Good
Recording
Register
Richard Williams
Robert Craft
Roxbury
Sensor
Sequencing
Smartphones
Social Media
Sorbonne
Standardized Parts
Steel
Tensile Strength
Thought Leader
Triangulate
Triangulation
Tulane
Urine
Wearable Devices
Workplace Discrimination

Semantics

Type Source Name
gene UNIPROT RENBP
gene UNIPROT SAGE1

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