Publication date: Sep 10, 2019
Sharing health information to inform precision medicine initiatives is taking data sharing to a whole new level-and crossing international datelines.
Spurred on by value-based care payment models and the need to manage populations of patients, payers and providers have become more adept at sharing data within their own systems and with other organizations in their region.
The U. S. government has pushed to improve interoperability and allow for wider dissemination of genomic and other data through programs such as the Precision Medicine Initiative and Sync for Science for good reason: Developing optimal medical treatments and drugs holds great promise for improving population health.
-There’s going to be big data management and master data issue that arises from all this data [and] getting the data in the right place at the right time will be a challenge. “
-There’s a data fabric that has to get created in the ecosystem,” says Munzoor Shaikh, a director in the healthcare and life sciences practice at West Monroe.
Rather, he envisions domain-specific data hubs, including one focused on precision medicine.
The ARC Innovation Center was founded at Israel’s largest hospital, Sheba Medical Center in Ramat Gan-participants include Intermountain Healthcare in Utah, Stanford Healthcare in California and Ottawa Hospital in Canada.
ARC, which stands for accelerate, redesign and collaborate and includes both a virtual and physical workspace, focuses on using AI, big data and genomics to drive precision medicine initiatives.
One of the reasons healthcare hasn’t realized the full potential of precision medicine is that it has focused too much on genomics, Zimlichman contends.
ARC uses a cloud platform called MDClone, which creates -synthetic data” from original data sets.
-Now we are able to take all of our malignant melanoma patients from Sheba, all of the patients from Intermountain and all of the patients from Ottawa and join them together into one source of data,” Zimlichman says.
Going beyond borders Canada’s Ottawa Hospital, a 1,200-bed academic health science center, participates in the ARC initiative with an eye toward providing high-quality care to its patients and better understanding the population it serves.
-Even though we have a lot of data and we’ve helped make it accessible, we don’t even have all the data for the population of patients we look after,” says Alan J. Forster, MD, the organization’s vice president of innovation and quality -People talk about big data, but we’re not really a big data shop right now because we don’t have all of the possible data that you could have of people that could tell you a story about their health. “
Bigger data sample sizes helps, too, in a district that includes just about 1. 3 million people.
Data data-sharing -unlocks our ability to understand the impact of our drugs, it helps us understand the value created from some of our procedures.
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