Acceptance Based Telephone Support When Transitioning to SPMS

Publication date: Jan 24, 2020

What is the purpose of the study? People with Multiple Sclerosis often say that they feel less support is available after they are diagnosed with Secondary Progressive Multiple Sclerosis, compared to before they received this diagnosis. People sometimes experience a lessening of support, despite their physical symptoms becoming more severe from both professionals and those in their personal lives. The purpose of this study is to see whether providing some telephone support to those who have recently received a diagnosis of Secondary Progressive Multiple Sclerosis is experienced as helpful and is possible to do practically. This study will help the investigators understand which type of support may be helpful for patients in the future and may pave the way for larger studies and changes to NHS provision. Who is it for? Participants will be those who have transitioned recently (within the last year) to Secondary Progressive Multiple Sclerosis. The investigators are inviting 40 participants to take part. What will happen to participants if they take part? Participants will be asked by their Neurologist or MS Nurse to take part in the study and will provide written consent to be contacted, which will be stored by the research team. Their details will be passed to the study team at the University of Nottingham, who will telephone the participant within a week to tell them a bit more about the study and ensure they are suitable for the study by asking them some questions. Following this, the participant will be sent some paper or online questionnaires to complete and return. After this, the researcher will visit the participant face to face to introduce themselves and answer any questions they may have. They will also tell the participants what “group” they have been randomly put into. There are two groups. Those in the first group would be asked to commit to receiving a 30 minute support phonecall each week for five weeks in addition to any usual care, and the second group will receive their usual NHS care. The support phonecalls will draw from techniques used in a type of psychological therapy (acceptance and commitment therapy). All the phonecalls can be done whilst the participant is at home or in a quiet place of their choosing. After this, both groups will fill in some more paper questionnaires eight and twelve weeks after the start of the study. The investigators expect that participants will be involved in the study for around 4 months. After the study, participants will also have the opportunity to feedback how they experienced being a participant in the study. Their responses will help the researchers understand their experience, and help them use this to think about how to adapt similar studies in the future.

Concepts Keywords
ABS Telephone intervention transition
ACT Contact telephone week
ANOVA Regulation emotion client
Anxiety Telephone intervention sessions
Arousal Groups
Clinical Psychologist Participants
CM Remote secure internet
Cognitive Session telephone
Concurrent Blinded
Confidence Interval Telephone sessions
Confidentiality Agreement Session informed
Content Delivery Secure dedicated server
Coping Telephone contact week
Cross Face face informed
Data Matrix Contact participant telephone
Dedicated Server Parity groups
Dementia Survey tools
Demographic G dementia
Depression Progressive disorder
Descriptive Statistics Point disease
Dictaphone Outcome measures illness
Disability Demographic illness
East Midlands Psychological therapy
Emotion Knowledge
Encryption Tests
Endeavour Research
GDPR Clinical research
Healthcare Design of experiments
Hospital Clinical trials
Hypothesis Testing Human subject research
Informed Consent Informed consent
Logging Randomized controlled trial
Matrix Sexual consent
Metastasis Spms
Mood Disorders Multiple sclerosis
Morbidity Encryption
Multiple Sclerosis CBT
Neoplasm SSL
Neurological
Neurologist
Neurology
NHS
NICE
Nottingham
Parametric Statistics
Parity
Patient Safety
Physical Activity
Privacy
Progressive
Protocol
Psychiatric Condition
Psychosocial
Qualitative Methods
Queens
Random Allocation
Randomisation
Randomised Control Trial
Randomised Controlled Trial
Randomization
Recording
Relapse
Secondary Care
Selection Bias
SPSS
SSL
Standard Operating Procedures
Stress
Survey
Telephone
Transcription
Variance
Windows

Semantics

Type Source Name
disease MESH Neoplasm Metastasis
disease MESH diagnosis
disease MESH Anxiety
disease MESH Depression
disease MESH dementia
disease MESH Secondary Progressive Multiple Sclerosis
disease MESH Multiple Sclerosis

Original Article

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