Diverse preferences, different solutions: Exploring remote monitoring preferences in Parkinson’s disease through a discrete choice experiment.

Publication date: Mar 24, 2025

BackgroundRemote monitoring solutions (RMS) have the potential to improve Parkinson’s disease (PD) management by enabling continuous symptom tracking and personalized care. Understanding patient preferences for RMS features is essential for successful implementation. ObjectiveThis study aimed to investigate the preferences of people with Parkinson’s disease (PwP) for RMS features and identify preference heterogeneity across distinct patient subgroups. MethodsFrom November 2023 to February 2024, a discrete choice experiment (DCE) was conducted among PwP in Finland and Italy to elicit preferences for RMS attributes, including monitoring frequency, time spent filling questionnaires, home video recordings, and clinical benefits (delay in advanced symptom onset). Latent class analysis (LCA) was used to identify subgroups with distinct preference patterns, and adoption probabilities under varying RMS scenarios were estimated. ResultsA total of 411 PwP participated, revealing significant heterogeneity in RMS preferences. While clinical benefits, particularly delaying advanced symptom onset, were the most valued attribute overall, preferences diverged across subgroups. Some participants strongly preferred home video recordings, whereas others expressed aversion to this feature. A smaller subgroup exhibited reluctance toward RMS adoption, regardless of its benefits. ConclusionsPwP generally view RMS favorably, but preferences for specific features vary substantially across subgroups. Clinical benefits are a key driver of adoption, while home video recordings elicit both strong preference and aversion, highlighting the impracticality of a one-size-fits-all approach. Tailoring RMS to diverse patient needs, addressing concerns, and enhancing usability through customization are essential for successful implementation and widespread acceptance in PD management.

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Concepts Keywords
February movement disorders
Finland Parkinson’s disease
Parkinson patient preference
Tailoring remote patient monitoring
remote sensing technology
telemedicine

Semantics

Type Source Name
disease MESH Parkinson’s disease
pathway REACTOME Disease
disease MESH Movement Disorders
pathway REACTOME Reproduction
drug DRUGBANK Coenzyme M
disease MESH tremors
disease MESH anxiety
disease MESH cognitive decline
drug DRUGBANK Huperzine B
disease MESH education level
drug DRUGBANK Levodopa
pathway REACTOME Translation
disease MESH Privacy
disease MESH uncertainty
drug DRUGBANK C31G
disease MESH pathological gambling
disease MESH Substance Use
pathway KEGG Parkinson disease
drug DRUGBANK Serine
disease MESH chronic diseases
disease MESH miscarriage
drug DRUGBANK Medical air
disease MESH epilepsy
disease MESH dementia

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